Deal
Breaking the Silence

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SCI -
Severe Communication Impairment
AAC -
Augmentative and Alternative Communication

FCT -
Facilitated Communication Training


The Right to Communicate

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DEAL works with people
with Fragile X Syndrome


People used to think that all people with Fragile X syndrome were very intellectually impaired. Since then they've been testing more widely and the present consensus view is that given on the Fragile X Association website -

"Fragile X is wide ranging in its effects, from subtle learning problems with an average IQ, to severe intellectual disability. Although there are many symptoms of fragile X that have educational implications for children with fragile X and their teachers, it is important to remember that any one child may present only a few of the problems or may present a range of symptoms but in a relatively mild form.

Speech and language are almost always affected, and indeed, delayed development here is often one of the earliest presenting features."

That's progress, but we can go further.  The people with Fragile X who are regarded as having "severe intellectual disability" are the ones who have more physical involvement and whose speech is worse.   At DEAL At DEAL we'd be very reluctant to conclude anything about the intelligence of a person with Fragile X (or any person with a diagnosis of intellectual disability) until we'd seen what measures could be taken to improve their physical abilities or their communication methods.






DEAL Communication Centre Inc.,
538 Dandenong Road, Caulfield, Victoria 3162, AUSTRALIA

Ph. (61-3) 9509 6324
Fax. (61-3) 9509 6321
e-mail: dealcc@deal.org.au
DEAL has now seen over 2,000 clients with diagnoses that  include

 Autism/ASDCerebral PalsyDown Syndrome,  Intellectual Impairment,   Learning Disability,   Fragile X SyndromeRett SyndromeStroke/CVA, 
Persistent/Permanent Vegetative State,  Acquired Brain Damage,
Motor Neurone Disease/ALS, and Huntington's Disease.
              
DEAL has been able to help people with all of these diagnoses to communicate.